Celostna obravnava bolnikov z rakom Comprehenisive care for oncology patients

implementation of Patient-Reported Outcome Measures (PROMs) questionnaire

Abstract

Napredki na področju diagnostike in zdravljenja raka pomembno prispevajo k boljšemu preživetju bolnikov z rakom, kljub temu pa se številni bolniki zaradi bolezni in zdravljenja soočajo z različnimi težavami in potrebami, ki jih onkološka obravnava ne zajema vedno. Ustrezno obvladovanje teh težav z zagotavljanjem celostne oskrbe je ključno za izboljšanje kakovosti življenja bolnikov z rakom. Da bi bolje razumeli doživljanje in izkušnje bolnikov z diagnozo, zdravljenjem in v fazi okrevanja, smo na začetku leta 2023 na Onkološkem inštitutu uvedli novo orodje za zbiranje informacij. Bolnike smo začeli izpraševati z mednarodno uveljavljenim vprašalnikom PROM (angl. Patient-Reported Outcome Measures), ki omogoča boljše razumevanje vpliva bolezni in zdravljenja na kakovost življenja. Prav tako nam omogoča boljšo prilagoditev
oskrbe glede na individualne želje in potrebe bolnikov. Bolnike s hujšimi težavami usmerjamo na obravnavo k ustreznim strokovnjakom. Z uvedbo celostne obravnave in uporabe vprašalnikov PROM smo dosegli pomemben napredek pri obravnavi bolnikov z rakom. Ti vprašalniki bolnikom omogočajo, da poročajo o svojem zdravstvenem stanju in počutju, kar zdravstvenemu osebju pomaga hitreje prepoznati individualne težave in potrebe ter prilagoditi oskrbo.

Abstract (Eng)

Advances in cancer diagnosis and treatment have made an important contribution to improving patient survival. However, many patients face different problems and needs as a result of their disease and treatment, which are not always covered by oncology care. Appropriately managing these problems by providing supportive care is key to improving the quality of life of cancer patients. To better understand patients' experiences and confrontation with diagnosis, treatment and in the recovery phase, we launched an important information-gathering tool at the Institute of Oncology at the beginning of 2023. We started interviewing patients using the internationally validated Patient-Reported Outcome Measures (PROMs) questionnaire to better understand the impact of disease and treatment on quality of life. It also allows us to better tailor care to patients' individual preferences and needs. Patients with more severe problems are referred to appropriate specialists. We have made significant progress in the management of cancer patients by introducing supportive care and the use of PROM questionnaires. These questionnaires allow patients to report on their health and well-being, which helps healthcare staff to identify individual patient problems and needs more quickly and to better tailor care.